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The University of Tennessee, Knoxville

Healthcare Reform and Concurrent Care for Children

Lisa Lindley, Assistant ProfessorCollege of Nursing

Children with terminal illnesses often need hospice care at end of life, yet most children do not access hospice services. Hospice eligibility rules have been identified as a critical barrier to pediatric hospice utilization. Healthcare reform or the Affordable Care Act of 2010 (ACA) is a policy response that modifies hospice eligibility rules for children at the end of their lives. On March 23, 2010, the ACA was signed into law by President Obama, and Section 2302 - Concurrent Care for Children become one of the first provisions to be enacted that same day. The provision eliminated the requirement that children enrolled in Medicaid or state Children's Health Insurance Plan must discontinue life-prolonging or curative therapies in order to enroll in hospice care. Although many provisions of the ACA will be effective in subsequent years (i.e., 2013, 2014), the early enactment of Section 2302 will be an important bellwether of how other ACA provisions are enacted and implemented. Therefore, the aim of this presentation is to discuss the impact of the Concurrent Care for Children provision on the delivery of end of life care for children and review the status of its implementation at the state level.

Note: This is a replacement for the previously scheduled presentation “Health Reform: What’s In It for Me?” by Carole Myers.​

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